Summary The effect of autism on siblings and parents
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Course
Autism Spectrum Conditions
Institution
University Of Reading (UoR)
These notes consider the role of siblings and parents of autistic children and adults. It looks at how neurotypical siblings can benefit autistic people through everyday life and through involvement in interventions. It also considers how having an autistic sibling/child can affect functioning and ...
Factors affecting parent stress and family adaption
Sibling roles
Involving siblings in interventions
Parenting stress
Hayes and Watson (2013) – meta analysis of parenting stress and experience
- Two authors involved in search
- 15 studies met inclusion criteria
o Compare parenting stress in parents of autistic children to comparison
o Validated measured or parenting stress
o Parents defined as primary care giver
- Results
o Found true difference between experience of children with autism and those with
typically developing children on stress
▪ Same for difference with children with other disabilities
- Can use this analysis to extract studies
Karst and Van Hecke (2012) – impact on parent and family
Asbury et al. (2020) – impact of COVID-19 (not specific to autism)
- 241 parents or carers of school aged kids with SENDs in the UK
- 92% mothers and majority from England
- Recruited during first fortnight of school closures
- Asked to describe in their own words how the outbreak is affecting own and childs mental
health
- Children reported to have increased anxiety and stress
- 6 categories of mental health impact
o Worry – self, others and general
o Loss – routine, loss of support network and structures, loss of specialist input and for
minority financial loss
o Mood – low mood, acting out and behaviour change
o Emotions and behaviour
o Knowing what is going on – low understanding leading to stress
o Over whelmed
, o Minimal or positive impact
Other literature
De Clercq, L. E., Prinzie, P., Swerts, C., Ortibus, E., & De Pauw, S. S. (2021). “Tell Me About Your
Child, The Relationship with Your Child and Your Parental Experiences”: A Qualitative Study of
Spontaneous Speech Samples Among Parents Raising a Child with and without Autism Spectrum
Disorder, Cerebral Palsy or Down Syndrome. Journal of Developmental and Physical Disabilities, 1-
35.
ABCx model of family stress
McCubbin and Patterson (1981)
Stressors – child symptom severity (Pastor-Cerezuela et al., 2016; Lyons et al., 2010; ), behaviour
problems (McStay et al., 2014), sensory processing, age (Rivard et al., 2014) and adaptive functioning
Family resources – social support (Boyd, 2002; Ault et al., 2021), marital quality (Harper et al., 2013;
Brown et al., 2020), economic stressors,
Literature
McStay et al. (2014)
- Investigate impact of stressors, resources, appraisals and coping strategies on parent stress
- Predicted – higher child problem behaviour, poor child adaptive functioning, lower level of
family sense of coherence and coping would predict higher stress in mothers
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