Inhoudsopgave
1 Ouderschap onder druk?............................................................................................................................. 6
1.1 Onderkennen, verwerken en aanvaarden......................................................................................................6
1.1.1 Ervaring van de ouders...........................................................................................................................6
1.1.2 Vier theoretische modellen....................................................................................................................6
1.1.3 Levend Verlies (Manu Keirse).................................................................................................................9
1.1.4 Parents of children with disabilities: resilience, coping and future expectations (Tali Heiman)...........9
1.1.5 Aandacht voor hulpverleners...............................................................................................................10
1.2 Gezinsfunctioneren en opvoeden.................................................................................................................11
1.2.1 Mogelijke opdeling van hulpvragen.....................................................................................................11
1.2.2 Theoretische modellen.........................................................................................................................12
1.2.3 Studie....................................................................................................................................................16
1.2.4 Magenta-Workshops............................................................................................................................16
1.2.5 Aandachtspunten voor hulpverleners..................................................................................................17
1.3 Ondersteunen van gezinnen.........................................................................................................................17
1.3.1 Ondersteuning gericht op FQOL: family-centered werken..................................................................17
1.3.2 Studie....................................................................................................................................................17
2 Anatomie van hersenen............................................................................................................................ 50
3 Oorzaken van NAH.................................................................................................................................... 50
5 Gevolgen van niet-aangeboren hersenletsel en begeleidingstips................................................................51
5.1 Fysieke stoornissen en beperkingen.............................................................................................................52
5.2 Cognitieve problemen..................................................................................................................................52
5.3 Beperkingen in communicatie......................................................................................................................52
5.4 Emotionele problemen.................................................................................................................................53
5.5 Gedragsproblemen.......................................................................................................................................53
5.6 Sociale gevolgen...........................................................................................................................................53
1 Zelfzorg..................................................................................................................................................... 54
1.1 Technologie..................................................................................................................................................54
1.1.1 E-society................................................................................................................................................54
1.1.2 Twee centrale begrippen......................................................................................................................55
1.1.3 Usability pyramid..................................................................................................................................55
1.1.4 Problemen............................................................................................................................................56
1.1.5 Onderzoek.............................................................................................................................................56
1.2 Modellen om na te denken over zelfzorg.....................................................................................................56
1.2.1 Modellen die focussen op geloof en intenties.....................................................................................57
1.2.2 Modellen die focussen op assessment, selectie, implementatie en evaluatie....................................58
2 Eigen gezin en sociaal netwerk.................................................................................................................. 58
2.1 Mantelzorgers..............................................................................................................................................59
2.1.1 Enkele cijfers.........................................................................................................................................59
2.1.2 PAB-budget...........................................................................................................................................59
4 Ondersteuning: verschillende lagen........................................................................................................... 60
1 Verklaringen van positieve en negatieve attitudes.....................................................................................61
2 Verdragen over Rechten van Personen met een Handicap.........................................................................61
2.1 Verdragen i.v.m. maatschappelijke positie van mensen met een handicap................................................62
3
, 2.2 Grondbeginselen van het verdrag................................................................................................................62
2.3 Stilstaan bij beïnvloeden van beeldvorming................................................................................................62
3 Strategieën gericht op positieve beeldvorming..........................................................................................62
4
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