Approach that improves the quality of life of pts (adults and children) and their
families who are facing problems associated with life-threatening illness. Prevents
and relieves suffering through early identification, correct assessment and tx of
pain and other problems, whether physical, psychosocial or spiritual
What is Palliative Care?
- provides relief from pain and other distressing symptoms
-affirms life and regards dying as part of the normal process of living
-neither hastens nor prolongs death
-integrates the psychological and spiritual aspects of pt care
-offers support system to pt to live as actively as possible until death and family
for coping
-enhances quality of life
-may positively influence the course of illness
-is offered early in the course of the illness, in conjunction with other therapies
intended to prolong life and includes investigations to better understand and
manage distressing clinical complications
Who is Palliative care for?
Patients and families living with a life-limiting illness
Who is End-of-Life Care for?
Patients and families who are in their last days to weeks of life
What is the focus of Palliative Care?
,Helping pts and families have the best Quality of Life possible so that the can live
a settled and peaceful life
What is the focus of End-of-Life care?
Comfort is the focus for pts and families to have the best QoL as death
approaches
What do care teams do in palliative care?
-Prevent and treat distressing symptoms
-Coordinate in-home care support services such as help with personal care,
equipment
-Help you talk with your family about your illness and what's important for you
and your wishes for your future healthcare
What do care teams do in End-of-Life care?
-Prevent and treat distressing symptoms
-Help determine the best services and location of care
-Support you and your family so you can focus on what's most important to you at
this time
Where are Palliative Care and End-of-Life services offered?
Home, Hospital, Hospice, long-term care, Assisted living facility, group home
Who is on the palliative care and end-of-life team?
Depends on what you need, MD, RNs, LPNs, HCAS, SW, EMS, PT, OT, RD,
volunteers etc
Benefits of a Palliative Care Approach
Pain mgmt, Symptom mgmt, Social, psyological, spiritual, and emotional support,
caregiver support
bowtie model of palliative care
,Illness Trajectories
Sudden death, Terminal illness, Organ failure, Frailty
Canadian Palliative Care Nursing Association Standards of Practice
- Person and family centered care
-Comfort care
-Coordination and navigation
-Quality and safety
Leadership
-Personal and professional growth
-End-of-life options
What might be challenges associated with enacting these standards?
Palliative Performance Scale
-Developed by Victoria Hospice
Measures performance status in palliative care in five key areas:
1- Ambulation
2-Ability to do activities
3-Self-care
4-Food/fluid intake
5- LOC
ACP (Advanced Care Planning)
, A way to help you think about, talk about, and document wishes for health care if
you become incapable of consenting to or refusing tx or other care
1)Think about your values and goal
2)Learn about your health
3) Choose your agent
4) Tell others your wish
5) Write a personal directive
Personal Directive
In Alberta, a personal directive is a legal document that names your agent
Different than a GCD: names an agent
Alberta Nurses' Palliative Care Competency Framework
Domains:
-Principles of palliative care
-Communication
-Care planning and collaborative practice
-Optimizing comfort and QoL
-Loss, Grief, Bereavement
-Professional and ethical practcie
-cultural safety
-self-care
-education
-evaluation
-research
-advocacy
What is Dyspnea?
-Subjective sensation of feeling SOB ,similar to pain or other symptoms
- Does NOT correlate well with physiologic parameters (ie SaO2), radiologic
testing, or lab results
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