Scriptie
Scriptie/Thesis Privacy en patiëntparticipatie (GW4030MV)
- Instelling
- Erasmus Universiteit Rotterdam (EUR)
Onderwerp: Digitalization of Health Care Governance
[Meer zien]Voorbeeld 4 van de 52 pagina's
Voorbeeld 4 van de 52 pagina's
In winkelwagengesponsord bericht van onze partner
Voorbeeld van de inhoud
How patient participation now emerges in the field of privacy and how this can beincreased: The case of the Maasstad Hospital
Health Care Management, Erasmus School of Health Policy and Management
Digitalization of Health Care Governance
Rotterdam, June 12th, 2022
Word count: 13233 including in-text references
, 2
Preface
[personal]
, 3
Abstract
Introduction and theoretical framework: Standards and regulations have been drawn
up for patient privacy in the digitization of care to guarantee the security of personal data, and
patient participation is considered important in healthcare, because it increases the quality of
care. The aim of this study is to present advice to increase patient participation in the context
of patient privacy, to guarantee the privacy of the patient according to the standards,
regulations and preferences of the patient in the rapid digital developments. In this context,
eHealth is defined as the organization and delivery of health services and information using
the Internet between the Maasstad Hospital and her patients. Furthermore, this research takes
the NEN 7510, GDPR, ISO/IEC 27701:2019 and patient participation into account.
Methodology and results: To reach the aim of the study, questionnaires were
conducted to patients at the Maasstad Hospital, and employees of the hospital were asked for
the interviews. Respondents for the questionnaires were randomly selected. Respondents for
the interviews were selected as long as they did not work for the department Information
Management. The responses to the questionnaires were analyzed using frequencies and a
Kruskal-Wallis One-Way ANOVA test, and the interviews were analyzed by open, axial and
selective coding. The results showed that the practical privacy measures resulting from the
ISO/IEC 27701:2019 is suitable for the patients, but that patient participation on the aspects
involved in choices, good information and good support is not sufficient.
Conclusion: Based on the results, the Maasstad Hospital should pay more attention to
the patient’s involvement and inform them in their practical privacy measures. On this basis,
the patient’s perspective should be taken into account, by involving them in the design of
processes of practical privacy measures, according to relevant rules and regulations. Another
advice is to provide information to patients, so they gain knowledge about privacy. The lack
of good information can be addressed by providing an informative leaflet or displaying
information on the website or patient portal. In all cases, it must be taken into account that the
text is easy to understand and not too long. This can help patients make informed choices and
can ensure greater support for certain practical privacy measures. Furthermore, increasing
patient participation is possible by embedding the IGJ eHealth assessment framework in the
NEN 7510.
Discussion: This research is a confirmation and complementation of the existing
literature on patient participation in combination with privacy, because it supports previous
research and provides concrete advice. Follow-up research can focus on respondents that are
only patients, older patients for the interviews and other hospitals or areas.
, 4
Table of contents
Chapter 1. Introduction..........................................................................................................................5
1.1 Problem statement.......................................................................................................................6
1.2 Aim of study, research questions and relevance..........................................................................7
1.2.1 Aim of study...........................................................................................................................7
1.2.2 Research questions................................................................................................................7
1.2.3 Societal relevance..................................................................................................................8
1.2.4 Scientific relevance.................................................................................................................8
1.3 Reading guide...............................................................................................................................9
Chapter 2. Theoretical framework........................................................................................................10
2.1 Basic concepts............................................................................................................................10
2.2 Relevant laws and regulations....................................................................................................12
2.3 Health and Youth Care Inspectorate’s eHealth assessment framework.....................................13
2.4 Practical privacy measures resulting from the ISO/IEC 27701:2019...........................................15
2.5 The framework...........................................................................................................................16
Chapter 3. Research methods..............................................................................................................18
3.1 Data gathering............................................................................................................................18
3.1.1 Semi-structured interviews..................................................................................................18
3.1.2 Conducting questionnaires...................................................................................................19
3.2 Data analysis...............................................................................................................................20
3.3 Ethical considerations.................................................................................................................20
3.4 Validity and reliability.................................................................................................................21
Chapter 4: Results.................................................................................................................................24
4.1 How is patient participation, in the context of the eHealth assessment Dutch national
framework of the IGJ, experienced by patients in the Maasstad Hospital?......................................25
4.2 How do patients look at the practical privacy measures resulting from the international ISO/IEC
27701:2019?.....................................................................................................................................30
Chapter 5: Conclusion...........................................................................................................................42
Chapter 6: Discussion...........................................................................................................................45
References............................................................................................................................................47
Appendices...........................................................................................................................................49
Appendix I: Topic list interviews (Dutch)..........................................................................................49
Appendix II: Questionnaire for patients (Dutch)...............................................................................51
Voordelen van het kopen van samenvattingen bij Stuvia op een rij:
Verzekerd van kwaliteit door reviews
Stuvia-klanten hebben meer dan 700.000 samenvattingen beoordeeld. Zo weet je zeker dat je de beste documenten koopt!
Snel en makkelijk kopen
Je betaalt supersnel en eenmalig met iDeal, creditcard of Stuvia-tegoed voor de samenvatting. Zonder lidmaatschap.
Focus op de essentie
Samenvattingen worden geschreven voor en door anderen. Daarom zijn de samenvattingen altijd betrouwbaar en actueel. Zo kom je snel tot de kern!
Veelgestelde vragen
Wat krijg ik als ik dit document koop?
Je krijgt een PDF, die direct beschikbaar is na je aankoop. Het gekochte document is altijd, overal en oneindig toegankelijk via je profiel.
Tevredenheidsgarantie: hoe werkt dat?
Onze tevredenheidsgarantie zorgt ervoor dat je altijd een studiedocument vindt dat goed bij je past. Je vult een formulier in en onze klantenservice regelt de rest.
Van wie koop ik deze samenvatting?
Stuvia is een marktplaats, je koop dit document dus niet van ons, maar van verkoper xmary. Stuvia faciliteert de betaling aan de verkoper.
Zit ik meteen vast aan een abonnement?
Nee, je koopt alleen deze samenvatting voor €8,49. Je zit daarna nergens aan vast.
Is Stuvia te vertrouwen?
4,6 sterren op Google & Trustpilot (+1000 reviews)
Afgelopen 30 dagen zijn er 55628 samenvattingen verkocht
Opgericht in 2010, al 14 jaar dé plek om samenvattingen te kopen